Charge Home

About Epilepsy

Brain Activity

Seizures -What to do

Personal Experiences

Van Gogh
Edward Lear
Fyodor Dostoevsky
Amanda Rapley-Redfern
Richard Haynes
Nathaniel Bone

Famous People with epilepsy links

Interactive version

About us


About my Epilepsy

I developed epilepsy in 1993. I was 33 years old and had recently come out of hospital following a road accident. I’d been hit by a car whilst riding my bicycle late at night. My memory was waking up in a hospital bed some four weeks later after having been out for the count, in a coma. Anyway that is the background to it all.

The doctor told me I had a high chance of developing epilepsy. To me that was falling about on the floor and pissing yourself, but to be honest, as my memory and mobility were in a pretty bad way, I didn’t really give it much attention.

Five months after the accident, I left hospital. Later that year at the end of 1993 I was taking a tube at Angel station. Apparently I went down like a block of wood , I was told by a couple of onlookers. I was out for a minute or so and an ambulance was sent for. I remember feeling a bit tired and groggy. I thought I’d fainted or maybe it was a blackout or epilepsy? I didn’t know. The people on the platform near me were really helpful and waited till the ambulance arrived. This struck me at the time as very helpful of them, as I wasn’t in any pain or in a visibly bad way.

I was taken to Bart’s hospital and it was diagnosed as epilepsy. The doctors told me there are many kinds of epilepsy. So much for my earlier image of the condition. I was already taking tablets for it since leaving hospital; sort of just in case.I spent some time finding out about the different kinds of epilepsy or at least trying to understand what to expect in my case. I joined the epilepsy association. And kept taking the tablets. I still do. Trying to understand my condition was a really big need in me. Maybe I could disentangle what was the effects of the accident and what was the effects of the tablets I had to take. They made me feel drowsy I felt.
Anyway, I kept on collapsing like this, sort of short fall outs every six to eight weeks for the following year. During that time I talked it over with my GP and put my tablet dosage up. The blackouts were less frequent.

Nevertheless I always felt an aura before hand. This was and is like a swoony, spacey feeling. A bit breathless and I’ve learned the best way to deal with it is to lay down or at lest relax. People are very accommodating or understanding. I’ve even lain down in the supermarket. I can recognise the signals pretty well now. This is good news for my chin which got a bit bruised in the early days from falling out instantly. People who saw it said it was pretty instant. I don’t stand too near the edge on tube platforms these days, or do tightrope walking.

I’ve got used to the drugs, as at least they’ve reduced the fits. I must be a model patient as I don’t drink too much either.
I joined the Epilepsy Association, my prime need was to try to understand what I could expect. Do things stay the same, deteriorate or improve? It was a similar need I had after brain damage from the accident. What can I expect to happen? What happens to others?

These are questions that every person with epilepsy needs to know.

Head Injury and Epilepsy

Headway_ The brain injury association

videoThe Strangest one I ever had

Christine Robertson

Real Player required
video 56k modem

video ISDN connection

Epilepsy -